Walking with Landon: A Community United for Gould Syndrome Research
On Sunday, October 19, more than 100 friends, family members, and supporters gathered in St. Louis to celebrate Landon’s 4th birthday with “Landon’s Fourth Walk” in honor of his journey with Gould Syndrome. It was a perfect autumn day filled with smiles, laughter, and hope.
This year’s event brought together nearly 40 lap sponsors — local businesses, organizations, and loved ones — who helped make the day an incredible success. For the second time, the family also hosted a lively raffle featuring gift cards, AirPods, NHL tickets, homemade art, and custom cornhole boards, adding even more excitement to the festivities.
Gould Syndrome is a rare genetic multisystem disorder caused by mutations in the COL4A1 and COL4A2 genes. It can lead to complications in the eyes, brain, heart, and kidneys—and in Landon’s case, he is experiencing eye abnormalities and epilepsy. About one-third of infants born with the syndrome have cataracts or developmental eye defects that can cause early-onset glaucoma. The condition is named for Douglas Gould, PhD, a UCSF geneticist whose pioneering research has brought hope to families around the world.
Last year, UCSF opened the world’s first Center of Excellence for Gould Syndrome. Now, Dr. Gould is joining with UCSF clinical colleagues in pediatric neurology and pediatric ophthalmology to create the world’s first center focused on patients with COL4A1/2 mutations. The goal is to spare families a painful path to diagnosis and specialist care.
Thanks to the generosity of so many, the event has surpassed its $20,000 goal! Proceeds directly benefit Dr. Gould’s research at UCSF, helping to advance treatments and improve quality of life for those affected by this rare disorder.
You can still show your support for Landon and the Gould Syndrome community by donating through the All May See Foundation Donate Page. Select Dr. Douglas B. Gould’s Research under “Designation” and include your honoree’s name under “Tribute Gift.”
Together, we’re taking steps toward a brighter future — one lap at a time.